Se-atlas-cartographic representation of experts for rare diseases
نویسندگان
چکیده
Motivation Numerous highly specialized facilities for the diagnosis and treatment of rare diseases exist in Germany, but it is challenging to present them adequately. Searching in the internet is a common way for patients to find medical information or appropriate clinical experts [1]. Existing services and databases such as Orphanet already offer good contact information to expert centers. A core challenge is to keep the data up to date and to ensure the expertise of the listed centers.
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